An official website of the United States government
Other Resources
* indicates required field
External Sites with non-NIA-funded Research Resources
Biologic Specimen and Data Repository Coordinating Center (BioLINCC) BioLINCC is the Biologic Specimen and Data Repository Coordinating Center for the National Heart, Lung, and Blood institute (NHLBI). The center coordinates data and biospecimens from NHLBI-funded studies that are available for use in other approved studies. BioLINCC also distributes teaching datasets from NHLBI-funded studies for use in biostatistics training programs.
Center for Clinical Observational Investigations Large clinical datasets are an essential resource for biomedical research as they can allow for greater strength and reliability in findings and may reduce the need for some traditional research trials. The mission of the Center for Clinical Observational Investigations (CCOI) is to reduce barriers to finding and evaluating for use relevant clinical datasets by providing a curated metadata profile comprised of an overview, basic statistics, and concept counts for each clinical dataset.
Duke Human Heart Repository Sponsored and managed by Duke University School of Medicine and Duke Surgery, the Duke Human Heart Repository is an ongoing repository of heart tissues from failing and non-failing hearts for research. Grant writers and collaborators are invited to contact the repository director directly to use the DHHR as a tissue resource.
Heart Centre Biobank A biorepository and registry of patients with congenital and other forms of heart disease. The Heart Centre Biobank provides a resource for investigators to study the genetic and environmental causes of heart defects and other diseases through the study of DNA, tissue, and skin samples from affected patients.
NIDDK Central Repository A repository containing biospecimens and data sets from studies sponsored by the National Institute of Diabetes and Digestive and Kidney Diseases of the National Institutes of Health. The site allows investigators to search for and request biospecimens and data sets which are housed in the repositories. NIDDK-funded studies may also find information on the processes for making submissions of biospecimens or data sets to the NIDDK through this site.
RD-Connect A global platform created to connect databases, registries, biobanks and clinical bioinformatics for rare disease research. It is funded by the European Union and is a central resource for researches focused on rare diseases.
Yale University Open Data Access Project (YODA) The YODA Project provides a means for rigorous and objective evaluation of clinical trial data to ensure that patients and physicians possess all necessary information about a drug or device when making treatment decisions. This process includes making participant-level clinical research data available for analysis by external investigators. This is a study data set resource ONLY.
NIH Data Sharing Catalog
The NIH Trans-NIH BioMedical Informatics Coordinating Committee (BMIC) has compiled and maintains an index of NIH-supported data repositories that make data available for reuse.
https://www.nlm.nih.gov/NIHbmic/nih_data_sharing_repositories.html